Tuesday, June 23, 2015

HH Karmapa arriving

Just found this, and for students, it might be uplifting to see, the feeling of OK, he's here.
His Holiness 17th Karmapa  is a powerful presence and  his practical teachings and living example have helped me to make some changes in my life that I've been wanting and needing to make. This is a bit of an understatement. I hope this might lead you to explore more for yourself and see what you think.

This was when he offered the 2011 teaching about the Buddha Shakyamuni at KTD Monastery, the Karmapa's North American seat, in Woodstock, NY. The Karmapa is the head of the Karma Kagyu lineage of Tibetan Buddhism. Khenpo Karthar Rinpoche, Abbot of the monastery, enters at end of video.


Sunday, June 21, 2015

To all the fathers in recovery: thank you!

Thank you for being in the rooms--my father never made it here.

Thanks to you, I know what it feels like to have a dad look me in the eye and say: you belong here,
you're doing great, I believe in you, keep going, you're not alone.

Thanks to you, I have an example of a man who has the courage to face his past and take responsibility for his actions today, willing to be the best man he can be today, and making the effort to change for the better, no matter what it takes, one day at a time.

Thanks to you, I can watch a dad, over time, make changes he can not see himself--even as we all witness day by day the often dramatic transformation to increasing wisdom and  compassion. We see your efforts to become a useful person, in your family and in the world, and your willingness to be a worker among workers, a human among humans, showing up with hard work and reaching for humility. We see you becoming more useful, more at peace and more mature. We see you discovering a new way to exist in this world, and we are inspired by your example.

Where once there was only fighting, and proving, or running and using--we see a true backbone and stability emerge--and where once a hard heart and harsh ways, now a more caring heart and more loving ways. This is the true meaning of strength. We see you becoming more a protector than one seeking protection, a source of strength instead of a cause for fear or confusion.

Thanks to you,  when I hear the word dad, I might think of you, and the kindness and patience you showed me when I faltered. Thanks to you, on Father's Day, I have someone special to remember and my heart glows with pride and sincere gratitude.

Whether you have 28 years or just one day, these steps you take to abandon what is harmful and to turn to what is good--helps me to believe that I too might change--and that perhaps, if they want to, many more could.

It doesn't matter if you are old enough to be my grandfather or young enough to be my son, you
who are a recovering dad, have been there for me as a human. Some of you have changed my life by giving me rides to meetings--and even the grocery store--when I could hardly walk, and some of you have lifted me up when I was most scared, with just with a genuine smile, or by saying with your quiet presence that we are in this together. This is the meaning of unconditional love.

And for those who are not dads, I know there are sons, and uncles and brothers in these rooms, who
deserve support and recognition--as we are all in this together as recovering humans.

HAPPY FATHER'S DAY, I LOVE YOU and THANK YOU, and keep coming back ODAT!

Tuesday, June 2, 2015

The good news about getting off narcotic painkillers when you are in pain

The good news is it not only can be done, but I did it--while in chronic, often torturous pain, with no encouragement from the doctors, no hope that it was possible, and no hint that the pain might diminish.

The great news is that before I began I was virtually housebound, using a cane and other assistive devices and had a home health care aide 20 hours a week. Today, just nine months later, I am walking, sitting, driving, and independent. I have not only hours but days without pain, and it no longer rules my life. Best of all, the terror and isolation I lived in, the state of constant hopelessness--is far diminished.
My life has meaning again, and there are even full days where I do not think about what brought me to such a state, and if I do it does not trigger me.

I seldom think of painkillers, where they were once my life, as I lived for the short moments of relief. They never relieved my pain--only gave my mind a temporary escape. I began with 5 mg. of oxycodone once nightly; I was prescribed more, bought fought it for a year, as I knew I would become addicted, and as I knew it did nothing to heal me or help me get a diagnosis, treatment plan or cure for the terrible internal nerve pain; the onset was immediately following an injury in a doctor's office during a diagnostic procedure, and it was complicated by my breaking my left hand, and then my left foot.
This , coupled with some extreme traumas--including loss of my home after hurricane, and the death of my two closest friends. These incidents were not related in any way--not the injuries, or the disaster or the deaths--and yet they all happened in a short time period, and wreaked havoc with my neurological system, in terms of processing both physical and emotional trauma. I did not know this at the time, but gained an understanding of this over the years when I began to heal.

The situation was fed by seeing so many doctors and specialists, and not given a clear picture or any hope, beyond prescriptions. WHen I went to see a new doctor last week, the intake nurse read me the list of meds I had been prescribed. I was so proud to tell her I wasn't on any of them--she barely blinked. But when the doctor came in, I asked if he had seen the list. He said yes--I thought to myself, I have to meet this person, I can't beleive they could still be alive.

I was prescribed codiene, morphine, oxycontin, valium, neurontin, lyrica and two or three other medications. I am on zero now.

The one person who gave me great hope was a pharmacist who explained to me about pain receptors closing down as you take narcotics, and then new ones opening up, thus requiring a higher dose. I could see this clearly in my mind--and that helped. For once, I didn't look it up to confirm, as almost nothing I looked up about my condition or its treatment offered any hope. I asked if it were possible that as I went down on the dose of the drug--(bit by torturous bit as it turned out)--if the pain receptors then might go in reverse and shut down, and I might end up in much less pain. She said absolutely yes.

This small bit of information is what I kept in my mind, holding onto it during the most torturous days. I kept telling myself I did not know what would happen in the end, but I did know what would happen if I stayed in excruciating pain, terror and on a high dose of drugs that was only climbing higher with each passing month.

I also used ice packs all over my body--and use zero now.

I was on 120 mg. a day when I began to cut the dose. I went on some online boards to see how others had suceeded; there wer emany more stories than I imagined, including ones from people, who, like me, had been legally prescribed for legitimate pain. I want to add my voice to this group--that it is not only possible, but there is a chance you will have your life back.

Of course there were times when the pain was so bad--I don't know how I stuck to my gameplan--or rather I do know; by praying and admitting that I was powerless over the drug, powerless over the pain, and turning it over, and using a daily recovery program, with the support of others. There were times--when I was about two thirds there, that I called an emergency room and was told by the doctors to stop immediately--that what I was doing was dangeorus. And it was dangerous, so I don't recommend it without medical help and a lot of support and guidance. i wouldn't want to be responsible for anyone suffering more than they are. Yet I do want to encourage anyone who feels in their heart that it is time to get off the drugs--time to live instead of die.

The pain and discomfort of withdrawal was like nothing I had ever experienced, sweating, "kicking"--the whole lovely experience I'd read about, but it was absolutely nothing compared to the months of phsyical pain as my body screamed out that it wanted , needed and deserved to be out of pain. This is where my other great help came in. Dr. Howard Schubiner, who works with pain syndromes that involve the way brain processes, perceives and gives back images of pain that are identical to pain caused by physicological inputs, such as the pain from an initial and severe injury that requires immediate treatment.  I had to continually convince myself that even though there was a physiological cause, that the signals were actually being produced in my brain, and the brain was quite malleable, and trainable, and perhaps, with the help of my higher power and my own effort and vigilance--that I could
convince my brain to stop offering such strong and disastrous signals, when after all, no help was ever going to come along--and furthermore, these signals were of no use.

All that pain signals do is convince you to get help, or to stop moving so you can not create more pain.

In my case, perhaps certain movements and positions were injuring me more--but I came to believe that this was not the case. It was fear that had convinced me, fear that had shut my life down to a pinhole, and fear that continued to produce the pain. No it was not in my mind, not a hysterical illness--
there were three key nerves involved and they cause some of the most heinous intractable pain you can imagine--the ilioinguinal, pudendal and genitofemoral nerves. I had also been told I had three herniated discs, an SI joint issue and other structural issues, and that these worked together to create constant muscle spasms.

I threw that all out the window. I marked on my calender the doses. I walked a mile every day even when it snows, regardless of pain. I engaged in my recovery program and made calls and helped others.
I turned my world into an outpatient rehab, or rather my higher power offered me the protection of a celestial rehab.

They had given me two drugs to get off the codiene--one a drug now classed as narcotic--I notice dthe effects right away and threw it down the toilet. The other was valium, and I used it carefully but was still up to a 5 mg tab by the time I was done. One week after being completely off the oxycodone, I began reducing the valium, which was probably insane, and I wouldn't advise it. particularly in my circumstance; however, I continued, and it was in some ways harder than getting off codiene, and
it has now been almost exactly 90 days free of that. It caused much anxiety, and I was afraid I would remain in that state for years--but less than three months later, I am so much calmer than I was, calmer and even saner, than all the years on those drugs.

I've been waiting to write this, but luckily so few read my blog! I've been waiting until I had the perspective to write something clear and hopeful--but I jsut want to share now, as something tells me there oculd be someone out there who doesn't need a perfect report, or perfect instructions, jsut some hope and encouragement that they will get better, and that they can do it.

YOU CAN DO IT--JUST NOT ALONE! god bless, and good luck, my prayers are with you.
I don't know you, but I believe in you. You deserve to have a good life--and to be free again--from pain, from anxiety, from isolation, from terror--and from dependency on drugs.








Sunday, May 31, 2015

I am a medical miracle--and this book helped


I wrote about 5,000 words today about nerve pain and trauma recovery, but it always gets too complicated! One day I hope to share my story and how I got better--share it clearly and in a way that is practical and useful. Easier said than done.

So let me start with  Essential Help for Your Nerves, 
by Claire Weekes, a hero and pioneer in this field !




This little book is for pain and trauma recovery what saltwater is for a toothache--a good old basic that really really works.

I love things that work without faith.  You simply use it, do it, take it, or apply it--and voila, works or doesn't work. Once you see it works and once you experience the results, then you have faith. This is my criteria for many things, but particularly when it comes to healing.

Of course faith and grace come in, and of course there is the matter of process and patience and time.
But there is a basic resonance that I believe in. And even in times of great mental delusion, my heart still had the ability deep within, to discern, it still had the little light, and the little click--when something was right. Sometimes it bypassed my brain--yes, it often bypassed my brain. sometimes I despaired of ever discerning--how do i know--what part of me is saying yes, what part of me is saying no--
and often i was confused beyond belief and paralyzed with fear, a fear I didn't even know was fear!

Yet--I GOT OUT!

I got out because I set out--and two years from the day I made that video, things have only gotten better. I could not and did not sit for two and a half years. I could not walk a block without a cane.
I traveled with an improvised seat made of a toilet seat taped to wooden blocks--or else I lay in the back of a car. I was in intractable pain 80% of the time, with a sensation of being tortured. I used ice packs all over my body. I was on mass quantities of narcotics. I was paranoid, terrified, isolated and hopeless.
Worse of all, I had come to completely doubt everything that was a source of truth, unity, love, joy and purpose.



Now--I walk wherever I please, and even hike. I sit--always! I drive--something I never thought I would do again! I am on zero drugs--HOORAY! I was given no hope--and I am a medical miracle!
I am a grandma of two adorable baby boys, the lights of  my life, along with my darling daughters and wonderful son-in-laws. I have much to live for and everything to be grateful for,




and hope to share anything that is useful so others might not suffer needlessly.



It turned out--THERE WAS A SOLUTION out of an entirely hopeless situation.

This little book came to me at least a year after I set out--

The book was not my solution and did not outline a program, but it was a gift as I discovered the solution, it was a piece of the solution, and it provided, and still provides some great relief and assurance, and I hope it helps you too! I'm not sure if she mentions nerve pain, but I am positive that if nerves are involved in the pain you have experienced, then you also experience the nerves involved in anxiety. In my case, these nerves seemed to become entangled--anxiety affecting pain and vice versa. I can now report that I am getting better equally in both departments. I sensed there had to be a technical reason and not just a karmic-i-am-permanently-doomed reason, that I felt like I was a shell packed full of unsheathed, cross-signaled nerves--I felt like a skinned cat--I reacted to every tiny input whether pain or sound or human look, as if it were magnified a thousand times. Now I can look back and say, it is SOOOOOOOO much better.

But it absolutely would not have gotten better on its own. I had to do something--I had to take all kinds of actions, and they all worked together, and I did not do it alone. There were various things that helped, often simple things. And this book was one, so I hope it helps you!

Here's what's exciting, and I believe Dr. Claire Weekes, and the other pioneers in traumatic pain syndromes would  agree --one is not doomed to suffer a chronic condition without cure, one does not have to learn to live with it, put on a brave face, make the best of it--but one can shift to an entirely new direction, in an entirely new way--and in time, know, without a doubt that you have recovered your life.


Monday, May 18, 2015

Living gratefully vs. telling yourself you should be happy

Telling yourself you should be happy....

...because three years ago I was in seemingly unending physical pain...not for a weekend...a year..but ceaselessly for years--and here i am sitting on my front steps listening to crickets and no pain.

...because so many people are suffering in this moment.

...because I am blessed with so many things, including the ones I care about more than my own life.

Etc. Etc.--this kind of should never produces happiness.

Yet, day by day, if I remember there is a new way, if I offer the best I can--in each moment---mostly in terms of mindfulness, willingness, a spirit of being present, of unity, in helpfulness--sometimes by smiling, sometimes by shutting up, sometimes by cleaning my bathroom floor--or taking a walk instead of looking up something useless online... these choices, and these compassionate or useful actions--no matter how I am FEELING--create a lif overall more peaceful and manageable, which in turn gives rise to moments of acceptance, peace, genuine feelings, genuine compassion, genuine friendship--

i sometimes miss the times of being run all over the place with my desires, with seeking, with the zest of acquistion, the satisfaction of controlling--but not the crashes that follow, the deep disappointments and crushing loss. Of course these still come in miniature bursts of I have to have--I can't stand this--and other strong emotions, in almost every day.

I have very little control, but I do have a choice, whereas in the grip of pain or illness or catastrophic loss and injury--it is choiceless.

For a few years now, since I decided to walk again, even a few steps at a time at first, I began to test the limits of what seemed a choiceless circumstance. Pain used to be a dealbreaker--not any more. And as I kept going in spite of pain, the pain diminished. Now I keep going--not just aimlessly,  and not with sheer willfulness, but with a new goal--and I keep going in spite of fear, dullness, anxiety, or any other negative emotion. My old goal used to be to get what I want or to avoid or annhilate what I did not want. Now it seems more about unity--with my higher power, with others, with a common goal, with my heart-- This new more conscious way feels awkward and seems to involve way too much discernment and effort at times--but when the fruits come, they are indescribably sweet--
to many, so subtle they might be overlooked. For me, something as simple as being with diverse people as equals in a circle--listening, and feeling part of--contributing sometimes solely by being present--
it is really impossible to explain, but to do this and feel at ease in body and mind, to feel useful, and part of--and not in control of the whole show--
this is the greatest joy.